Ashkenazi Jewish Genetic Panel (AJGP)
Other Places To Get Help
Online Resources
Canadian Association of Genetic Counsellors (CAGC) Web Address: www.cagc-accg.ca The Canadian Association of Genetic Counsellors (CAGC) is a professional organization of genetic counsellors, physicians, social workers, and students in related fields.
Canadian Directory of Genetic Support Groups Canadian Association of Genetic Counsellors (CAGC) and the Regional Medical Genetics Centre at Children's Hospital of Western Ontario Web Address: www.lhsc.on.ca/programs/medgenet The Canadian Directory of Genetic Support Groups provides a resource guide for families and professionals seeking information on genetic support groups in Canada.
Organizations
Canadian Association for Tay-Sachs and Allied Diseases 569 Laural Drive Burlington, ON L7L 5E1 Phone: (905) 634-4101 Web Address: www.catsad.ca This organization was formerly called National Tay-Sachs and Allied Diseases of Ontario. It provides emotional support and guidance to parents of children afflicted with Tay-Sachs or an allied disease. Although the group is centred in southern Ontario, membership and queries from all of Canada are welcome.
Canadian Cystic Fibrosis Foundation 2221 Yonge Street Suite 601 Toronto, ON M4S 2B4 Phone: (416) 485-9149
1-800-378-2233 (toll-free from Canada only)Fax: (416) 485-0960 E-mail: info@cysticfibrosis.ca Web Address: http://www.cysticfibrosis.ca or http://www.ccff.ca Canadian Organization for Rare Disorders 151 Bloor Street West Suite 600 Toronto, ON M5S 1S4 Phone: 1-877-302-7273 toll-free
(416) 969-7464Web Address: www.cord.ca The Canadian Organization for Rare Disorders (CORD) provides information on over 6,000 rare conditions. Through a network system, CORD links together individuals and families with the same rare disorder.
Genetic Alliance 4301 Connecticut Avenue NW Suite 404 Washington, DC 20008-2369 Phone: (202) 966-5557 Fax: (202) 966-8553 E-mail: info@geneticalliance.org Web Address: www.geneticalliance.org The Genetic Alliance is an international organization made up of millions of people with genetic conditions and more than 600 advocacy, research, and health care organizations that represent their interests. The Alliance builds partnerships to promote healthy lives for all those living with genetic conditions.
The Genetic Alliance promotes healthy lives by working to speed the translation of genetic advances into quality and affordable health care, public awareness, and consumer-centered public policies.
 Go to previous section |  Go to top of page |  Go to next section |
| Author: | Jan Nissl, RN, BS Sydney Youngerman-Cole, RN, BSN, RNC | Last Updated: October 12, 2006 |
| Medical Review: | Renée M. Crichlow, MD - Family Medicine Adam Husney, MD - Family Medicine Siobhan M. Dolan, MD, MPH - Reproductive Genetics Renee H. Martin, PhD - Medical Genetics | |
 | ||
