Cystic Fibrosis Carrier Screening

Other Places To Get Help

Organizations

Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD  20814
Phone: 1-800-FIGHT CF (1-800-344-4823)
(301) 951-4422
Fax: (301) 951-6378
E-mail: info@cff.org
Web Address: www.cff.org
 

This organization coordinates, supports, and accredits cystic fibrosis centers nationwide and provides funds and support for research.


Genetic Alliance
4301 Connecticut Avenue NW
Suite 404
Washington, DC  20008-2369
Phone: (202) 966-5557
Fax: (202) 966-8553
E-mail: info@geneticalliance.org
Web Address: www.geneticalliance.org
 

The Genetic Alliance is an international organization made up of millions of people with genetic conditions and more than 600 advocacy, research, and health care organizations that represent their interests. The Alliance builds partnerships to promote healthy lives for all those living with genetic conditions.

The Genetic Alliance promotes healthy lives by working to speed the translation of genetic advances into quality and affordable health care, public awareness, and consumer-centered public policies.



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Author: Debby Golonka, MPH
Ralph Poore
Last Updated: August 20, 2007
Medical Review: Michael J. Sexton, MD - Pediatrics
Susanna McColley, MD - Pediatric Pulmonology
Andrew Swan, MD, CCFP, FCFP - Family Medicine

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Topic Contents
 What Is Cystic Fibrosis?
 What Causes Cystic Fibrosis?
 What Is Carrier Screening?
 Who Should Be Screened?
 What If I Am a Carrier?
 Is Screening Accurate?
 Should I Be Screened?
 Why Not Be Screened?
Arrow PointerOther Places To Get Help
 Related Information
 References
 Credits