Cleft Lip

Other Places To Get Help

Organizations

Hospital for Sick Children, Cleft Lip and Palate Program
555 University Avenue
Toronto, ON  M5G 1X8
Phone: (416) 813-1500
Web Address: www.sickkids.ca/cleftlip
 

The Hospital for Sick Children, Cleft Lip and Palate Program provides information, education, and support to patients, families, and health professionals. The program offers multiple teaching pamphlets and booklets for this purpose.


Cleft Palate Foundation and American Cleft Palate-Craniofacial Association
1504 East Franklin Street
Suite 102
Chapel Hill, NC  27514-2820
Phone: 1-800-24-CLEFT (1-800-242-5338)
(919) 933-9044
E-mail: info@cleftline.org
Web Address: www.cleftline.org
 

The Cleft Palate Foundation (CPF) is a nonprofit organization that provides information to parents of newborns with clefts and other craniofacial birth defects and to the health professionals who deliver and treat these infants. The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health professionals in over 40 countries who are involved in treatment and/or research of cleft lip, cleft palate, and other craniofacial conditions.

Callers to the toll-free phone number can get medical information as well as resources to find regional parent-patient support groups.


La Leche League International (LLLI)
1400 North Meacham Road
Schaumburg, IL  60173-4808
Phone: 1-800-LA-LECHE (1-800-525-3243)
(847) 519-7730
Fax: (847) 519-0035
TDD: (847) 592-7570
E-mail: LaLecheEmail@aol.com
Web Address: www.lalecheleague.org
 

La Leche League International (LLLI) offers information and encouragement—mainly through personal help—to all mothers who want to breast-feed their babies. It also offers support and information about breast-feeding babies with various disabilities, such as cleft lip or cleft palate. Call for information about a chapter in your area.


Wide Smiles
P.O. Box 5153
Stockton, CA  95205-0153
Phone: (209) 942-2812
Fax: (209) 464-1497
E-mail: josmiles@yahoo.com
Web Address: www.widesmiles.org
 

This organization offers materials, online chat groups, and other resources for parents of children with cleft lip and cleft palate.



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Author: Douglas Dana
Debby Golonka, MPH
Last Updated: March 28, 2008
Medical Review: Michael J. Sexton, MD - Pediatrics
Arden Christen, DDS, MSD, MA, FACD - Dentistry
Andrew Swan, MD, CCFP, FCFP - Family Medicine

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