Hemophilia

Other Places To Get Help

Online Resource

Héma-Québec
Web Address:	www.hema-quebec.qc.ca
Héma-Québec's mission is to efficiently provide adequate quantities of safe, optimal blood components, substitutes, human tissues, and cord blood to meet the needs of all Quebecers. The organization also provides and develops expertise along with specialized and innovative services and products in the fields of transfusion medicine and human tissue transplantation.

Organizations

Association of Hemophilia Clinic Directors of Canada (AHCDC)
30 Bond Street (70 Bond LL)
Toronto, ON  M5B 1W8
Phone:	(416) 864-5042
Fax:	(416) 864-5251
E-mail:	vogela@smh.toronto.on.ca
Web Address:	www.ahcdc.ca
The AHCDC is dedicated to ensuring excellent care for persons with congenital bleeding disorders in Canada through clinical services, research, and education.
Canadian Blood Services
1800 Alta Vista Drive
Ottawa, ON  K1G 4J5
Phone:	(613) 739-2300
Fax:	(613) 731-1411
E-mail:	feedback@bloodservices.ca
Web Address:	www.bloodservices.ca
Canadian Blood Services (CBS) is a not-for-profit, charitable organization, governed by the provincial and territorial Ministers of Health, whose sole mission is to manage the blood and blood products supply for Canadians. CBS collects approximately 800,000 units of blood annually; screens donors and tests blood or blood product collected for transmissible diseases; and processes them into the components and products that are administered to thousands of patients each year. CBS also manages the Unrelated Bone Marrow Donor Registry (UBMDR) to match donors for Canadian bone marrow transplant patients and for patients in other countries. CBS operates in all provinces and territories except Québec. In Québec, Héma-Québec (www.hema-quebec.qc.ca) performs this role.
Canadian Hemophilia Society
625 President Kennedy Avenue
Suite 505
Montreal, QC  H3A 1K2
Phone:	(514) 848-0503 1-800-668-2686
Fax:	(514) 848-9661
E-mail:	chs@hemophilia.ca
Web Address:	http://www.hemophilia.ca
The Canadian Hemophilia Society provides information, education, and support services to people with inherited bleeding disorders. It also does research into hemophilia and other bleeding disorders with the goal of finding a cure.
National Heart, Lung, and Blood Institute (NHLBI)
P.O. Box 30105
Bethesda, MD  20824-0105
Phone:	(301) 592-8573
Fax:	(240) 629-3246
TDD:	(240) 629-3255
E-mail:	nhlbiinfo@nhlbi.nih.gov
Web Address:	www.nhlbi.nih.gov
The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating heart, lung, and blood diseases.
National Hemophilia Foundation (NHF)
116 West 32nd Street, 11th Floor
New York, NY  10001
Phone:	(212) 328-3700
Fax:	(212) 328-3777
E-mail:	HANDI@hemophilia.org
Web Address:	www.hemophilia.org
The National Hemophilia Foundation (NHF) is dedicated to the cures of inherited bleeding disorders and the prevention and treatment of their complications through education, advocacy, and research. The NHF has chapters throughout the country and a communications network that brings health professionals and the public the latest news about bleeding disorders. NHF's Web site provides information on the nature, symptoms, and treatments of many disorders.
World Federation of Hemophilia
1425 René Lévesque Boulevard West
Suite 1010
Montréal, QC  H3G 1T7 Canada
Phone:	(514) 875-7944
Fax:	(514) 875-8916
E-mail:	wfh@wfh.org
Web Address:	www.wfh.org
The World Federation of Hemophilia works to introduce, improve, and maintain care for people with hemophilia and related bleeding disorders around the world. The WFH provides various health care development programs and publications. The Web site provides general information on the disease, as well as research updates. Links to other organizations and further research resources are also listed.

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Author:	Robin Parks, MS Ralph Poore	Last Updated: October 12, 2007
Medical Review:	Anne C. Poinier, MD - Internal Medicine Brian Leber, MDCM, FRCPC - Hematology
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