Down Syndrome
Other Places To Get Help
Online Resource
Down Syndrome General Information Down Syndrome: Health Issues Web Address: www.ds-health.com/ A pediatrician and father of a child with Down syndrome created this site to help medical professionals and parents understand the issues facing people with Down syndrome and their families. The site features news and information, including articles about the genetics of Down syndrome, health issues related to the condition, and practical issues such as toilet training.
Organizations
Canadian Down Syndrome Society 811-14 Street NW Calgary, AB T2N 2A4 Phone: 1-800-883-5608
(403) 270-8500Fax: (403) 270-8291 E-mail: dsinfo@cdss.ca Web Address: www.cdss.ca The Canadian Down Syndrome Society (CDSS) provides information and resources to help enhance the quality of life for all individuals who have Down syndrome. The CDSS offers a publication clearinghouse, a resource centre and library, and listings of parent support groups.
Canadian Paediatric Society 2305 Saint Laurent Boulevard Ottawa, ON K1G 4J8 Phone: (613) 526-9397 Fax: (613) 526-3332 E-mail: info@cps.ca Web Address: www.cps.ca The Canadian Paediatric Society (CPS) promotes quality health care for Canadian children and establishes guidelines for paediatric care. The organization offers educational materials on a variety of topics, including information on immunizations, pregnancy, safety issues, and teen health.
Down Syndrome Research Foundation and Resource Centre 1409 Sperling Avenue Burnaby, BC V5B 4J8 Phone: 1-888-464-DSRF (1-888-464-3773)
(604) 444-3773Fax: (604) 431-9248 Web Address: www.dsrf.org The Down Syndrome Research Foundation and Resource Centre (DSRF) offers educational and training programs, research results, and a variety of publications for individuals with Down syndrome and their families.
Down's Syndrome Medical Interest Group Children's Centre, City Hospital Campus Nottingham, NG5 1PB UK Phone: 0115-962-7658 ext. 37905 Fax: 0115-962-7915 E-mail: info@dsmig.org.uk Web Address: www.dsmig.org.uk The Down's Syndrome Medical Interest Group (DSMIG) is an informal network of international doctors from the United Kingdom and the Republic of Ireland who aim to share and disseminate medical information about Down's syndrome. The Web site includes a medical library with information developed specifically by DSMIG as well as selected information from other sources. It also includes the U.K. Down's syndrome growth charts and minimum medical care standards.
Although the site is written and designed for health professionals, some information is written specifically for parents and caregivers. This information is intended to be helpful, but is not meant to replace direct medical consultation.
March of Dimes 1275 Mamaroneck Avenue White Plains, NY 10605 Phone: (914) 997-4488 Web Address: www.marchofdimes.com The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents.
National Down Syndrome Congress (NDSC) 1370 Center Drive Suite 102 Atlanta, GA 30338 Phone: 1-800-232-NDSC (1-800-232-6372)
(770) 604-9500E-mail: info@ndsccenter.org Web Address: www.ndsccenter.org The National Down Syndrome Congress (NDSC) is a national advocacy organization and a major source of information, support, and empowerment for people with Down syndrome and their families. NDSC's goal is to create a climate in which all people will recognize and embrace the value and dignity of those with Down syndrome. NDSC can provide information on the nearest Down syndrome clinic in your area.
National Down Syndrome Society (NDSS) 666 Broadway New York, NY 10012 Phone: 1-800-221-4602 Fax: (212) 979-2873 E-mail: info@ndss.org Web Address: www.ndss.org The National Down Syndrome Society (NDSS) supports individuals, families, medical researchers, and health professionals to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. NDSS also works to discover the underlying causes of Down syndrome through research, education, and advocacy. The organization distributes educational materials, encourages and supports the activities of local parent support groups, sponsors conferences and scientific symposia, and undertakes major advocacy efforts to increase public awareness and acceptance of people with Down syndrome.
National Institute of Child Health and Human Development P.O. Box 3006 Rockville, MD 20847 Phone: 1-800-370-2943 Fax: (301) 984-1473 TDD: 1-888-320-6942 E-mail: NICHDInformationResourceCenter@mail.nih.gov Web Address: www.nichd.nih.gov The National Institute of Child Health and Human Development (NICHD) is part of the U.S. National Institutes of Health. The NICHD conducts and supports research related to the health of children, adults, and families. NICHD has information on its Web site about many health topics, and you can contact information specialists for specific requests.
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| Author: | Debby Golonka, MPH Ralph Poore | Last Updated: October 4, 2007 |
| Medical Review: | Adam Husney, MD - Family Medicine Michael J. Sexton, MD - Pediatrics Donald Sproule, MD, CM, CCFP, FCFP - Family Medicine | |
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