Interstitial Cystitis

Important
It is possible that the main title of the report Interstitial Cystitis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

Hunner's Ulcer
IC
Hunner's Patch
Pelvic Pain Syndrome
Trigonitis
Urethral Syndrome

Disorder Subdivisions

None

General Discussion

Interstitial cystitis is a chronic, painful inflammatory condition of the bladder wall characterized by pressure and pain above the pubic area along with increased frequency and urgency of urination. This occurs because of chronic inflammation of the lining of the bladder and swelling of the interior walls of the bladder. Affected individuals urinate frequently with pain even though there is no diagnosed bladder infection. In a small percentage of cases, people with interstitial cystitis also have scarring and ulcerations on the membranes that line the bladder. Interstitial cystitis typically affects young and middle-aged women, although men can also have this disorder. The exact cause of interstitial cystitis is not known.
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Resources

Interstitial Cystitis Association
110 North Washington St
Suite 340
Rockville, MD 20850
USA
Tel: 3016105305
Fax: 3016105308
Tel: 8004357422
Email: ICAmail@ichelp.org
Internet: http://www.ichelp.org

American Urological Association Foundation
1000 Corporate Blvd.
Linthicum, MD 21090
USA
Tel: 4106893700
Fax: 4106893800
Tel: 8667464282
Email: auafoundation@auafoundation.org
Internet: http://www.auafoundation.org

NIH/National Kidney and Urologic Diseases Information Clearinghouse
3 Information Way
Bethesda, MD 20892-3580
Tel: (800)891-5390
Email: nkudic@info.niddk.nih.gov
Internet: http://kidney.niddk.nih.gov/

International Painful Bladder Foundation
Burgemeester Le Fèvre de Montignylaan 73
3055 NA
Rotterdam,
The Netherlands
Tel: +31-10 4613330
Fax: +31-10 4613330
Email: info@painful-bladder.org
Internet: http://www.painful-bladder.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 1/3/2007
Copyright 1986, 1988, 1990, 1991, 1994, 1996, 1997, 1998, 1999, 2000, 2007 National Organization for Rare Disorders, Inc.

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