These stories are based on information gathered from health
professionals and consumers. They may be helpful as you make important health
decisions.
Juan, age 61: About 3 years ago I was
diagnosed with ALS. My disease is progressive and fatal. I am confined to a
wheelchair and am also having difficulty swallowing. At some point, I will no
longer be able to breathe on my own. When that time comes, I wish to die
peacefully. I do not want to be held captive by machines, nor do I want to put
my family through the agonizing position of trying to decide when to remove
life support.
Rex, age 57: My chronic obstructive pulmonary
disease is very unpredictable. I understand that my illness is progressive and
most likely will lead to my death. Even though I have frequent bouts of
pneumonia, each episode has been treatable and I have been able to resume my
life. I was on a ventilator with one of my previous bouts with pneumonia. In
this case, the pneumonia was treated and I was weaned off the machine. I feel
my life is worth living, even with COPD, and I am not willing to forgo
aggressive life-sustaining medical care just because I have an incurable
illness.
Grace, age 79: I have been living with heart
disease for 20 years. In addition, I have problems with skin sores because of
my diabetes. My doctor has talked to me about the possibility that my heart may
stop at any time. He asked me about whether I want to have CPR done if my heart
stops beating. We also talked about whether I want to be hooked up to machines
to keep me alive. If my heart stops suddenly, I do not want
911 called. I definitely do not want to be
connected to life support! When my time comes, I want to go quickly and calmly.
I do not want to live my final days in a hospital hooked to machines. This
seems too cold and undignified.
Yao, age 36: It was just about 18 months ago
that I was diagnosed with a brain tumour. I have undergone surgery, radiation,
and chemotherapy, but my tumour has reappeared. My family and I have discussed
the probability of my death, and we are ready to call
911 if an emergency arises. Aside from my
brain tumour, my health is excellent. If I should choke or get in an accident, I
still want emergency services called and CPR performed. I am even willing to be
placed on a ventilator if my condition has any chance of improving.