Considering ethical, legal, and religious implications of genetic tests

The decision to have genetic tests may involve consideration of your ethical, legal, and religious issues.

  • The discovery of a genetic disease may affect a person's future ability to get work or private insurance coverage. This may be true for a disease that affects you late in life, such as Huntington's disease, or for a disease that can be detected in a fetus, such as Down syndrome. Results will not affect your health coverage under your provincial health plan.
  • Genetic tests may detect a serious disease in a fetus that will greatly impact its life after birth and impact the lives of caregivers. A pregnant woman who is considering genetic tests may want to consider her ethical, social, and religious beliefs to help her determine the actions she would take if test results are positive.
  • A genetic test result is sensitive information. Your confidentiality should be maintained and the release of information should be limited to those who are authorized to receive it.

If you are considering genetic tests, you should clearly understand the implications of all possible test results before making a decision about testing. Genetic counselling can help you explore the implications of possible test results.



Author: Douglas Dana
Maria G. Essig, MS, ELS
Last Updated: February 29, 2008
Medical Review: Anne C. Poinier, MD - Internal Medicine
Siobhan M. Dolan, MD, MPH - Reproductive Genetics
Renee H. Martin, PhD - Medical Genetics

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